Doctolib AI Data: How to Opt Out
Starting August 2026, Doctolib (used by ~70M patients in France) is using patient health data for an AI research project with Inria, Inserm, and Université Paris Cité. The data use is opt-out by default, patients must act to refuse. Privacy groups have raised concerns. Sources: Franceinfo, Que Choisir, GinjFo, CNews.
The context
Starting in August 2026, Doctolib, France’s dominant medical appointment platform with approximately 70 million patients, launched an AI research project in partnership with Inria, Inserm, and Université Paris Cité. The project uses pseudonymized patient health data: clinical notes, prescriptions, and medical histories that practitioners enter into the platform. The key controversy: participation is opt-out by default. Patients who do not take an active step to refuse are treated as having consented.
Guides on how to opt out spread virally across French media around July 30–August 1, 2026 (Que Choisir, Franceinfo, CNews, GinjFo), following publication of the project’s details. Privacy advocates highlighted the gap between opt-out consent and the explicit, informed consent standard normally expected for sensitive health data under GDPR. The Ligue des droits de l’Homme warned of ‘non-negligible risks of stigmatization, discrimination and abusive profiling.’
The controversy is compounded by prior distrust: Doctolib was previously found to be using US tech providers including Anthropic for some AI features, and a major health data breach at rival platforms Viamedis and Almerys in May 2026 raised the stakes around medical data in France. To opt out: log into doctolib.fr → Mon compte → Mes données/Confidentialité → object to research use. Sources: Franceinfo, Que Choisir, GinjFo, CNews.